Health Care : Current Reviews

Results of our first patient driven research month

World Congress & Expo on Healthcare IT and Nursing

August 21-22, 2018 | Paris, France

Rogier Koning

Nobism, Spain

Posters & Accepted Abstracts: Health Care Current Reviews

Abstract:

Nobism is building a platform to support Patients, Leaders and their Advocates to collect data and use it do do research. We started by setting-up a Facebookgroup ???Cluster Headache ??? Patient Driven Research??? We collect data about our personal symptoms and all the treatments we do to feel better. We???ve started Collecting data in July and at the moment of this writing we have almost a 100 patient together collecting their data. Beginning of August we will share and analyse our first data set. Patient Driven research is not the same as Medical research. Its a research based on statistics, symptoms dropping or rising and comparising of treatments taken. Knowing patients do more than only medicines, we???ve added the option to collect data about all treatments we do, to find the best ones available. Most patient driven projects are setup NON-PROFIT and need to hold out their hands to get funding. Thats a hand you cannot byte. Nobism builds to create a place were patients can be COMMERCIAL like the rest of the world to generate the income for own research and Advocacy. Nobism will start by supporting existing patient groeps in research. By adding functionality, we???ll transfer groups to nobism. We aim to become WORLD LEADER in supporting and representing Patients in Research.

Biography :

Rogier Koning is the Founder of Nobism. Attending the Rudolf Steiner school until High school, educated him to always ask “why” to understand the reason behind it, to be critical and always view subjects from various sides. His personal live thought him that if you find a bull on the way , go around, under or if you have to go over it. Don’t let it stop you. After Highschool he studied at the TU Delft for a year changing afterwards to the Design Academy in Eindhoven and started soon his own company to build and design digital work. After moving to Spain Cluster Headaches started to change his life. This was a very big Bull on his road but his determination and stubbornness will bring to the other side of it.

E-mail: info@nobism.com