Journal of Blood Disorders & Transfusion

Challenges in the management of hemophilia: An experience from developing country

5^th World Hematologists Congress

August 18-19, 2016 London, UK

Suresh Hanagavadi

JJM Medical College, India

Posters & Accepted Abstracts: J Blood Disord Transfus

Abstract:

Hemophilia is X-linked recessive disorder, characterized by deficiency of factor VIII or factor IX, known as hemophilia-A & hemophilia-B respectively. It is distributed worldwide with equal frequencies in all ethnic groups & geographic areas with an incidence of 1 in 10000 hemophilia-A and 1 in 3000 hemophilia-B. According to this, there would be more than 100,000 people with hemophilia (PwH). But according to the latest data at Hemophilia Federation India, only around 16,000 PwH are registered. Basic diagnostic and treatment facilities are restricted to major cities and majority of district hospitals, even medical colleges do not have basic coagulation screening facilities. The scenario of hemophilia care in developing countries is different, though 80% of PwH reside in this part of the world. Early diagnosis, provision of adequate and safer treatment, proper education and counseling of the families are major challenges. Most of the PwH are not treated or under treated, leading to crippling disabilities, death due to life threatening bleeds and transmission of blood borne infections due to transfusion of wet blood products are common complications. However, the advocacy efforts of Hemophilia Federation India and its chapters are slowly changing the scenario of hemophilia care. Extensive public awareness programs, training of medical/paramedical professionals, resource mobilization and lobbying advocacy with state and union government has resulted in improving the care. However, an effective strategy to involve government in hemophilia care and providing optimized care to all PwH is ongoing effort by Hemophilia Federation India.

Biography :

Email: drhanagavadi@gmail.com