Journal of Clinical Research & Bioethics

Jolien Schaeverbeke

Publications

• Research Article
  Amnestic MCI Patients’ Perspectives on Volunteer Participation in a Research Context
  Author(s): Gwendolien Vanderschaeghe*, Jolien Schaeverbeke, Rik Vandenberghe and Kris Dierickx Gwendolien Vanderschaeghe*, Jolien Schaeverbeke, Rik Vandenberghe and Kris Dierickx
  
  Background: Inclusion of patients in research studies is immensely important when evaluating new biomarkers for Alzheimer’s disease (AD) and when the efficacy of possible treatment options is under trial investigation. If medical treatment is to advance in slowing the progression of AD, or even preventing it, voluntary participation of patients is not only important but also their reliable participation is key. To get closer in achieving this goal, researchers need to understand better what motivates research participants to enroll in a clinical trial and get insight into participants’ expectations about their participation. Furthermore, what researchers perceive as benefits and risks of a study can differ from participants’ view. This difference could lead to a situation in which researchers recruit fewer subjects than they expected or result in unr.. View More»
  DOI: 10.4172/2155-9627.1000305

  Abstract PDF