Journal of Clinical Research & Bioethics

Béatrice Godard

Publications

• Research Article
  Influence of Demographic Characteristics of Participants on Consent to Genomic Research into Congenital Heart Disease
  Author(s): Charles Dupras, Gregor Andelfinger, Michèle Paré, Maryse Thibeault and Béatrice Godard Charles Dupras, Gregor Andelfinger, Michèle Paré, Maryse Thibeault and Béatrice Godard
  
  Background: The enrollment of sick children and their families in genomics studies calls for a comprehensive view of the consent process. Few studies have searched for correlations between the demographic characteristics of participants (age, gender, parental lineage) or their level of participation (affected children, parents, or other relatives), on the one hand, and patterns of consent to specific pediatric research procedures, on the other (DNA banking, use of cardiac tissue, disclosure of a cardiac condition, creation of cell lines, recall of a participant). Objectives: This study sought to analyze the extent to which respondents participation in genomic research into congenital heart disease, based on their consent to specific procedures, revealed patterns correlated with their demographic data. Methods and findings: Data were abstracted .. View More»
  DOI: 10.4172/2155-9627.1000199

  Abstract PDF